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A seated group of six young people react to a young man in the centre of the group relaying a story.
Project

Youth LIVES

Youth LIVES (Youth LIVed Experience of Evidence Synthesis) is a youth mental health research project funded through UKRI’s Citizen Science Collaboration award. Using participatory methods and evidence synthesis, Youth LIVES is co-designing novel mental health research with young people aged 14-21 and mental health researchers.

Active project

2021–2024

Youth mental health is a global priority challenge. Young people deserve to have their needs met by mental health research that asks and answers the questions that matter most to them. Achieving this goal requires researchers to view young people with lived experience not only as participants in their studies or recipients of their findings, but as partners and leaders in their own right. This requires citizen science to adopt radically different ways of working with young people that facilitate equal contribution throughout the research process. Beyond the direct impacts of enhancing both researchers and young people’s knowledge and skills, this can ensure more relevant, accessible and impactful research is conducted and communicated.

The Youth LIVES project is led by SEI York and the Centre for Reviews and Dissemination, with contributions from the School of Arts and Creative Technologies at the University of York.

Youth LIVES is a citizen science mental health research project that seeks to produce priority mental heath research proposals for young people. The project brings together youth co-researchers (young people aged 14-21 with lived experience of mental health) with mental health researchers across a program of facilitated sessions to identify research areas of interest; conduct evidence mapping and other knowledge sharing activities; build appropriate research methods, and co-create and share a co-designed research proposal. The project is split into 4 research teams, focused on youth priority topics identified through co-design sessions. These topics are

  • Access to mental health support and support in schools
  • Neurodiversity and mental heath in young people
  • Pets and animal companions and youth mental health
  • Suicide and self harm in young people

Our approach is based on radical collaboration: youth co-researchers are equal partners in identifying priority research questions and developing research proposals to address these. The project supports young people in being fully integrated into the design and development process, with capacity building, relationship building and financial reimbursement to enable young people to take an active role and work with confidence alongside professional researchers. Through peer-to-peer learning and signposting to methods and materials, we support researchers in making an authentic space for collaboration with the young people.

The project will continue through to December 2024 with the support of partners Leaders Unlocked and Mental Health Foundation, alongside support from UKRI and The Young Foundation.

Sarah West

Centre Director

SEI York

Rhys Archer
Rhys Archer

Research Fellow

SEI York

Victoria Beale

Communications Specialist

Communications

SEI York

Discussion paper

This is the first in a series of short discussion papers produced by the Institute for Community Studies, to share learning and reflections from the UKRI-funded Citizen Science Collaboration Grants (CSCG).

This paper focuses on the experience of doing “citizen science”. This involves exploring what it means and feels like to be involved in “citizen science” from a range of perspectives. The paper explores cross-cutting themes from the program, alongside stories from CSCG projects, sharing reflections and questions to support further inquiry. It includes a case study (p.13) on the Youth Lives project.

Topics and subtopics
Health : Well-being
Related centres
SEI York

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